Eighteen months
ago, 28-year-old Mistura Martins was a young woman with all the glory of
womanhood written on her plump and
beautiful face.
Her picture
showing a good head of hair – by the way, she is a hairdresser – and a smiling
face that seemed to tell the world that she had no worries in the world, bears
no resemblance to the gaunt figure that sat on a chair in front of a bungalow
in Shomolu area of Lagos, when our correspondent visited.
But despite her
severely emaciated look, Mistura tried to smile and make jokes, braving the
agony of her condition like a warrior.
But Mistura’s
younger sister and her father, a 68-year-old church worker and retiree, Mr.
Babatunde Martins, told our correspondent that that afternoon was one of her
finest days.
“You are just
lucky that she is conversing normally and responding like this. If you had come
some other times, you would even be afraid for her the way she might look.
Sometimes, she can hardly sit up and lift any part of her body,” Mistura’s
father said.
Mistura chronicled
the beginning of her woes, tracing it to late 2014, when she started getting
some symptoms that she thought were mere allergies.
She told Saturday
PUNCH, “It started as a mere headache. The headache was really serious.
Then I started having sore throat. One morning, I woke up and realised that I
became very tired when I walked a short distance. I also realised I could not
carry a small bucket of water.
“Finally one
morning, I woke up and could not lift myself up. I was too tired to lift my
body. That was when I realised something was really wrong with me. My dad came
and took me to the hospital. The first hospital I got to at Surulere had to
refer me to the Gbagada General Hospital where a diagnosis revealed that I had
kidney problem.”
Unfortunately for
Mistura, by the time she was diagnosed, she already had end-stage renal
disease.
Doctors said
Mistura requires constant dialysis. For over one year now, Mistura has been
undergoing exhausting dialysis twice weekly via a tunnelled catheter to keep
her alive. One dialysis session costs her father N25,000 and during each
session, she has to take Erythorpoeitin and Iron sucrose which cost N8,400 and,
N2,000 respectively. In other words, her father expends N70,800 on her dialysis
weekly.
Mistura’s father
said he had turned to a beggar just in a bid to fund his daughter’s weekly
dialysis.
“Now, neighbours
run away from me when they see me. They don’t want me to ask them for money. It
is not my fault; I can’t stand by and watch my precious daughter die. She is
precious because she always found a way to put a smile on my face before the
illness,” he said.
According to a
copy of the diagnosis obtained by our correspondent, Mistura’s end-stage renal
disease requires a kidney transplant.
At the moment,
Mistura’s family members are agonising over how to raise money for the payment
of any kidney donor they get. Then they would have to pay for the travelling
expenses of three persons to whichever country the kidney transplant would be
done along with post-transplant drugs.
According to a cost
analysis from doctors at the Healing Stripes Hospital, Victoria Island, Lagos,
for her complete care, she would require N900,000 for dialysis over a period of
three months (at N25,000 three times weekly); N201,600 for her Erythropoietin
injection over the same period; N600,000 for pre-transplant screening; N5m for
the transplant itself; N1.5m for post-transplant drugs for the first one year
and N48,000 for Iron sucrose for the first three months.
In total, for the
complete transplant-inclusive care, Mistura requires at least N8.3m.
“Unfortunately, we
have to look for a donor ourselves. We have been asking a lot of people and we
were told a donor demands about N2.5m. Adding that to the cost of the complete
care itself is scary to think about,” Mistura’s father told Saturday PUNCH.
“Both the donor
and patient (recipient) will be screened to ensure fitness for surgery and
compatibility. The cost of the screening is approximately N600,000. She would
also need post-transplant anti-rejection drugs for the rest of her life,” one
of her doctors said.
To the Martins
family, this cost is like a mount that can only be surmounted by God’s grace.
Mistura’s father
said that the money he had saved up over the years had been expended on his
daughter’s dialysis alone.
“I have had to go
from church to church and mosques to beg for money. Some have been helpful. By
God’s grace, that begging, loans and debts I have racked up have kept her alive
till today,” he said.
When our
correspondent visited, he was just about going out. He said he was on his way
to look for money again.
“Now, I don’t have
a choice but to take my search for money beyond worship houses. I have decided
to visit club houses too. I am that desperate to keep my daughter alive,”
Mistura’s father said.
It was a Thursday,
but Mistura required another session of dialysis the following day. Sadly, her
father said he did not have a single kobo yet to pay for that session when our
correspondent met with him.
Yet, he beat his
chest, boasting that God would not let him down.
Saturday PUNCH learnt that the family has set up an account for
members of the public who might want to lend a helping hand to keep Mistura
alive. They said donations can be made to the account: Sultan Mistura
Martins; First Bank; account number 3056205030.
However, Mistura
is full of hope. She believes she would find help.
But all her
bravado was not enough to conceal the toll that constant dialysis had taken on
her.
She said, “I am
just tired of this dialysis. I know that is what is still keeping me alive till
now. But I am really tired. I wish a miracle would just happen to make the
transplant possible now.
“I can no longer
urinate or even menstruate. If not for the good family I have, I don’t know what
would have happened to me.”
Source: Punch Newspaper.
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